Psychological processes of suffering of palliative care patients in Malaysia: a thematic analysis

BMJ Support Palliat Care. 2019 Mar;9(1):e19. doi: 10.1136/bmjspcare-2015-001064. Epub 2016 Apr 20.

Abstract

Although suffering in palliative care has received increasing attention over the past decade, the psychological processes that underpin suffering remain relatively unexplored.

Objective: To understand the psychological processes involved in the experiencing of suffering at the end phase of life.

Methods: Semistructured interviews were conducted with 20 palliative care inpatients from an academic medical centre in Kuala Lumpur, Malaysia. The transcripts were thematically analysed with NVIVO9.

Results: 5 themes of psychological processes of suffering were generated: (1) perceptions, (2) cognitive appraisals, (3) hope and the struggles with acceptance, (4) emotions and (5) clinging. A model of suffering formation was constructed.

Conclusion: The findings may inform the development of mechanism-based interventions in the palliation of suffering.

Keywords: Malaysia; Palliative Care; Psychosocial Care; Suffering; Thematic Analysis.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Female
  • Hospice and Palliative Care Nursing / methods*
  • Humans
  • Inpatients / psychology*
  • Malaysia
  • Male
  • Middle Aged
  • Palliative Care / psychology*
  • Stress, Psychological / nursing*
  • Stress, Psychological / psychology*